Hi everyone! I wish I was coming to you with a surgery update...but no such luck! However, today we had a follow up appointment with Williams normal pediatrician. He has been with us since William was born and Jacks pediatrician before that. Can I just say that he is amazing? He is a very down to earth guy and knows when to put on his 'parent hat' to keep me from panicking. He said it could take a little while for the cardiologists to determine an approach since it's such a big hospital. If we don't hear by Friday he said he will put in a call for us.
And now we hurry up and wait!
Until then...he has put William on an iron supplement to strengthen his blood supply for surgery. We were told he will need a blood transfusion so that's a little scary!! {par for the course during this type of surgery} He is also having me add a formula powder to his breast milk to help plump him up before surgery. Anything we can do to make him stronger we will do! His incision sights from the cath are healing great and he said overall he looks good.
Emotionally, I haven't cracked yet. I'm pretty proud of that, but I know at some point I will lose it. Logistically, we have a lot to figure out. Jack is only 20 months old and to leave him for any amount of time breaks my heart. For him, I try to stay strong to keep his little life as normal as possible. I'm so lucky and blessed to have family close by that can help us through this journey.
William has an amazing group of doctors behind him...and we have a lot of positive thoughts and prayers pushing him along thanks to all of you! It truly means the world to us!
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